“Autism acceptance” means all autistic people…
April 23, 2024, 10:20 AM
For those not aware, April has been designated as Autism Awareness/Acceptance Month. I tend to fall more on the “acceptance” side of things, since it’s not so much about making people aware about autism and autistic people as it is to accept us for who we are, and for them to not infantilize or otherwise behave patronizingly towards us. I also feel as though there are a lot of misconceptions about autism, and the activities that various organizations have put on in recognition of autism have not done anything to help dispel these misconceptions. The biggest thing that I’ve noticed is that the focus is often entirely on children, which makes me think that too many people seem to believe that autism is something that just affects children, and that it’s not something that adults also deal with. In other words, autistic children are all well and good and all, but they eventually grow up to become autistic adults. Autism is not something that you outgrow as you get older. You don’t just stop being autistic once you reach adulthood. Autistic people may become very adept at hiding it, also known as “masking”, as they get older, but beneath it all, they’re still autistic.
That said, I take great issue with people’s focusing solely on children when discussing autism, because it is a lifelong condition. In my case, I am very high-functioning, and so while growing up in the 1980s and 1990s, my autism went undiagnosed. That meant that I got no autism-specific support as a child and as a teen. That’s not the fault of anything specific to my situation, though, since autism wasn’t as well understood back then, and high-functioning cases like mine weren’t typically diagnosed. I admit that I have mixed feelings on that, as I’ve heard about some of the interventions and other alleged “help” for autistic people at the time. So while it might have been helpful for me to have had some autism-related support, remembering the ham-handed way that the school tried to address my toe walking when I was in kindergarten, I don’t necessarily know if I would trust them to help me out with that.
Continue reading…It’s been ten years since I left that place…
November 26, 2023, 3:02 PM
This year marks an anniversary that just seems weird to think about: it has now been ten years since I left my job at Food & Water Watch. Ten years since I finally decided that enough was enough, and left an extremely toxic work environment.
The relationship started out innocently enough. Back in 2007, I was really involved with political activism, and I was also looking for a job that would enable me to get out of Walmart and move out on my own. A nonprofit organization that advocated for consumer issues seemed like a perfect fit. It was something that I could easily explain to my parents when it came to what the organization did, and the job that they were offering, office manager, was a perfect entry-level job for someone getting their first “real” job after college. I remember finding them in a search on Idealist.org while sitting at an Internet terminal at the Staunton Public Library, a few hours after Walmart fired me. I bookmarked their listing, and then, two days later, I fired off an application for them while sitting with my laptop at a coffee shop in downtown Staunton, along with a bunch of applications to other places. I got a call for an interview a few days later, and then I scored a second interview at the end of the first interview. The second interview went well, and then the following week, I got a call offering me the job. I produced this Journal entry immediately after getting it.
The job, meanwhile, was one of constant evolution. When I started, the organization was only about twenty people, with most working out of the Washington, DC headquarters. My role was something of a generalist in a small nonprofit. Then as the organization grew, my generalist role evolved with the organization. Over the years, I want to say that they created about five or six different specialized roles out of my job functions. And eventually, they evolved my role right out of existence, and made it very personal, even though there was no reason for it to be that personal. You know that it has to be bad when someone quits a job like that without something new lined up, and that’s exactly what that job was, as the toxicity was starting to consume me. But despite having to cash in my 403(b) account in order to have money to live on while I figured out my next move (and let it be known that those bastards never paid out my unused vacation time), I ultimately landed on my feet, getting a job in public transportation that I still enjoy nine years later.
Twenty years out of college…
July 12, 2023, 12:20 PM
This year marks twenty years since I graduated from college, and in seeing all of the people posting stuff about college graduations and such on Facebook these last few months, it’s made me realize that I have a lot to say about my college experience. It’s one of those things where I wish that I had known then what I do now, and it makes me wonder how things might have gone if I had reached the same present as today, but knowing what I know now.
It’s worth noting that with the passage of time, I have come to view my college years in an increasingly negative light. In the moment, as documented in my College Life website, which now serves as an archive of what was once a section of the main website, I was having a pretty good time and enjoying life – or at least that’s the public face that I tried to put on about it. The truth is that I never felt a sense of belonging there, my performance caused me to develop a major inferiority complex while there, and I coped with the stress of the environment in unhealthy ways. I believe that the root cause of all of my difficulties was a then-undiagnosed case of autism. However, high-functioning cases of autism like I have still weren’t really looked for and diagnosed like they are today. I was not formally diagnosed diagnosed with autism until 2022 at the age of 41, when I finally decided to put the question to rest.
First, though, when it came to my deciding whether or not to go to college, that was never really a decision. My parents had determined, practically from conception, that I would go to college, and that was that. When it’s been drilled into your head that you were going to college like it was a commandment from on high or something for your entire life, that’s just what you did, largely from not knowing any better, and that you would then get a “college job” after getting that degree. So growing up, any thoughts that I might have interest in fields that didn’t require a college education were more or less, quashed and any exploration of those fields was discouraged because that conflicted with my parents’ plan to send me to college. It was also strongly implied that any path that did not lead to a college degree was a failure, because it didn’t live up to my parents’ expectations for me. It caused me to think that the people who went down the vocational track in school were failures, because they couldn’t get into college. I understand that my parents wanted what they thought was best for me, and they considered a college education to be that thing, but the mindset that they inadvertently instilled was quite toxic, and it took many years to unlearn. I suppose that was something of a failure on their part, because with my now being the same age as they were when they were raising me, they almost definitely knew better about jobs that didn’t require a college degree, but that’s not what they instilled in me, intentionally or not.
A missed (or ignored) opportunity to really do some good…
May 9, 2023, 8:39 AM
I’m sure that you all are familiar with how terrible my seventh grade year was at Stuarts Draft Middle School. I’ve written about it at some length, and also discussed it a little bit more after my autism diagnosis last year. Recall that during seventh grade, I had a large problem with bullying, both from the students and from the staff. In fact, that year was unusual because of heavy bullying from fellow students as well as staff. Most of the time, the bullying largely came from the staff, and bullying from fellow students was less so (though it did happen), but in seventh grade, it came from all over pretty consistently (Michael Stonier was just the most memorable of many), and I was miserable for it.
Frank Wade, the chief bully on the staff side that year, had referred me to guidance for my alleged “problems”, and I would visit with Jan Lovell, the guidance counselor, on a weekly basis for the remainder of the year. I didn’t mind going to guidance, because while they were terrible in their own right with their continued attempts to gaslight me into thinking that I was the problem rather than the victim, it meant that I wouldn’t have to deal with my bullies for a time. In hindsight, though, this was just exchanging one bully, i.e. Mr. Wade and all of the kids that he enabled, for another bully, i.e. Mrs. Lovell the guidance counselor, but one bully was easier to handle than multiple bullies at once, though it was still crappy no matter how you sliced it.
Recently, I was thinking about one thing that I brought to Mrs. Lovell towards the end of the year, and I realized that she either missed or deliberately chose to ignore a tremendous opportunity to look into a bullying problem in the school. It really made me think that while I don’t know how much they were paying her to be the guidance counselor, whatever it was, it was probably too much. At that point in the year, I recognized that things were very bad, and I also recognized that the chances that things would improve before the end of the year were slim to none. To that end, I had already mentally written seventh grade off as irreparable. In other words, I was just doing my best to make it through it, and looked towards the future. To that end, I had prepared a list for the guidance counselor of all of the kids that I did not want to be in homeroom with the following year, with the idea’s being that since guidance was the entity that did student scheduling and such, I was submitting this request to the correct department. It was not a large list, mostly because homerooms were done alphabetically by last name. Therefore, I only had the chance of being in homeroom with people with last names starting with P through Z. So out of about 300 kids in a grade, I only had the possibility of being in homeroom with about 75 of them, and my list was limited to that subset. And considering that students were arranged in three different “teams” in middle school, each belonging to a group of teachers who all worked together with the same kids, what I was really asking was that I be on a different team than these kids in eighth grade.
Categories: Autism, Middle school, Schumin Web meta
When I learned the answer, I was not at all surprised…
October 10, 2022, 9:20 AM
Recently, a question that I had been wondering about for a long time was answered definitively. For many years, I had suspected that I had some form of autism spectrum disorder, and over the summer, I took myself in to be evaluated in order to finally get an answer to that question. And the answer is yes, I have Autism Spectrum Disorder Level 1, which was formerly known as Asperger’s Syndrome. I kind of knew this all along, but I really didn’t want to self-diagnose and then act based on a self-diagnosis. I’m not an expert here, after all, and for something like this, I wanted to do it the right way. I never really discussed it much on here, but just about all of my friends who are autistic had suspected that I was autistic as well. They knew what they were looking at, and they saw it in me.
It certainly took me long enough to get around to getting diagnosed, though. I had wondered if I was on the autism spectrum for quite a number of years, and I had found Dr. Kara Goobic, a doctor who diagnosed autism in adults, about three years ago. I then kind of mentally filed it away for a while, as I had other things going on, though I did ask about other people’s experiences with Dr. Goobic on Reddit one time in a comment and got no response. Then this past spring, my curiosity about the autism question finally got the best of me, and I began communication with Dr. Goobic via email. We discussed what the process would entail, we determined that her practice was able to take my insurance, and we scheduled appointments around my work schedule. The first two sessions discussed my history growing up and as an adult, I completed some questionnaires (Elyse also completed one questionnaire asking about her experience with me), and then the third session was feedback and discussion. The appointments were great. Dr. Goobic and I got along quite well, and the various sessions went smoothly. And in the end, on the third session, which was feedback, I got a lot of different resources and such to check out, and overall, it was a very positive experience. I went into the sessions with Dr. Goobic with the assumption that I was doing this primarily for my own edification, and that from a functional/practical standpoint, having a diagnosis would change nothing for me other than making me a more informed person, and therefore, I had nothing to lose from it, and everything to gain.
The diagnosis confirmed what a lot of us had already suspected, so my reaction was something along the lines of, “Well, there you go.” That was exactly the diagnosis that I was expecting, so I was not surprised at all. A surprise would have been if the process had completed and it had turned out that I wasn’t autistic in some way. Regardless, it’s good to know what the name of the thing is, because when you know what it’s called, then you can do some research on the thing based on its name, and get a better understanding of what it is.
Categories: Autism, Childhood, Elementary school, JMU, Middle school, Myself, Work